Illinois Regional Representative

Reg Rep photo Denien and Matthew 2024

Denien Rasmussen
IL

My name is Denien Rasmussen, and I am a Regional Representative for PRISMS, as well as, an SMS…

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KevinOConnor

Kevin O’Connor
IL

My name is Kevin O’Connor, and I am a Regional Representative for Illinois. My son, Deane is 27…

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Illinois SMS Clinic

Chicago

Smith-Magenis Clinic
Rush University Medical Center

Ages seen: Children and Adults
Medical Director: Elizabeth Berry-Kravis, MD, PhD
Clinic Coordinator: Angel Wang
Email: angel_wang@rush.edu
Phone: 312-942-4036
Web: https://www.rush.edu/

Illinois Resources

FIRST THING TO DO:  SIGN UP FOR PUNS

PUNS – Prioritization of Urgency of Need for Services
To receive any IL state benefits you must be on the list.

 

“The Book”
How to Navigate the
Illinois Disability System
https://www.farley1.com/The_Book_Robert_H_Farley_Esq.pdf

 

Developmental Disability Service Agencies List 

 

ADA Center
Great Lakes ADA Center
University of Illinois at Chicago
Institute on Disability & Human Development (MC 728)
1640 West Roosevelt Road, Room 405
Chicago, IL, 60608
(800) 949-4232 (V/TTY)
(312) 413-1407 (V/TTY)
adata@adagreatlakes.org

 

Assistive Technology
Illinois Assistive Technology Program
1 W. Old State Capitol Plaza, Suite 100
Springfield, IL, 62701
(800) 852-5110 (V/TTY, in IL only)
(217) 522-7985 (V/TTY)
wgunther@iltech.org

 

Autism
Illinois Center for Autism
548 South Ruby Lane
Fairview Heights, IL, 62208
(618) 398-7500
info@illinoiscenterforautism.org

 

CHIP
(health care for low-income uninsured children)
Illinois All Kids
(800) 843-6154

 

D D Council
Illinois Council on Developmental Disabilities
830 S. Spring Street
Springfield, IL 62704

 

Developmental Disabilities
IL Division of Developmental Disabilities
Department of Human Services
319 E. Madison, Suite 4N
Springfield, IL, 62701
(888)337-5267

 

Early Intervention
Bureau of Early Intervention
Department of Human Services
222 S. College, 2nd Floor
Springfield, IL, 62704
(800) 323-4769 (in IL only)
(217) 782-1981
janet.gully@illinois.gov

 

Epilepsy
Epilepsy Foundation Greater Southern Illinois
3515 N Belt W
Belleville, IL, 62226-5944
(866) 848-0472
(618) 236-2181

 

Epilepsy Foundation of Greater Chicago
17 N. State, Suite 650
Chicago, IL, 60602
(800) 273-6027
(312) 939-8622
(312) 628-4770(TTY)
info@epilepsychicago.org
Independent Living

 

Intellectual & Developmental Disabilities
The Arc of Illinois
18207-A Dixie Highway
Homewood, IL  , 60430
(708) 206-1930
tony@thearcofil.org

 

Learning Disabilities
Learning Disabilities Association of Illinois
10101 S. Roberts Road, Suite 205
Palos Hills, IL, 60465
(708) 430-7532
LDAOFIL@ameritech.net

 

Mediation
Illinois State Board of Education
Division of Special Education Services
Springfield Office
(217) 782-5589
Chicago Office
(312) 814-5560

 

Mental Health
Division of Mental Health
Department of Human Services
110 S Grand Ave E
Springfield, IL 62762
(800)-843-6154
401 S Clinton St
Chicago, IL 60607
(800)-843-6154

 

Mental Health America of Illinois
70 East Lake Street, Suite 900
Chicago , IL, 60601
(312) 368-9070
cwoz@mhai.org

 

NAMI Illinois, National Alliance on Mental Illness
218 W. Lawrence
Springfield, IL, 62704
(800) 346-4572
(217) 522-1403
namiil@sbcglobal.net

 

Mental Health – Youth
Division of Mental Health
Department of Human Services
Springfield
(800) 843-6154
Chicago
(800) 843-6154

 

Parent Organizations
Family Support Network of Illinois
5739 W. Martindale Lane
Peoria, IL, 61615-9669
(309) 693-8981
fsn@familysupportnetwork.org

 

Parent Teacher Association (PTA)
Illinois Congress of Parents and Teachers
901 S. Spring Street
Springfield, IL, 62704-2790
(800) 877-9617
(217) 528-9617
il_office@pta.org

 

Parent Training and Information Center (PTI)
Family Resource Center on Disabilities
11 E. Adams, Ste 1002
Chicago, IL, 60604
(312) 939-3513 (V)
(312) 939-3519 (TDD)
info@frcd.org

 

Parent Training and Information Center (PTI)
Family Matters
Parent Training and Information Center
1901 S. 4th Street, Suite 209
Effingham, IL, 62401
(866) 436-7842
(217) 347-5428 (V/TTY)
deinhorn@fmptic.org; info@fmptic.org

 

Parent-To-Parent
Family Resource Center on Disabilities
11 E. Adams, Ste 1002
Chicago, IL, 60604
(312) 939-3513
info@frcd.org

 

PERC
Parent Education Resource Center
520 Plum Grove Rd
Palatine, IL  60067

 

Preschool, Disabilities
Division of Early Childhood Education
100 N. First Street, C-428
Springfield, IL, 62777-0001
(217) 524-4835
hhenders@isbe.net

 

Protection & Advocacy
Equip for Equality, Inc.
20 N. Michigan, Suite 300
Chicago, IL 60602
(800) 537-2632 (V)
(312) 341-0022 (V)
(800) 610-2779 (TTY)
contactus@equipforequality.org

 

For a listing of resource centers that provide legal or advocacy services at no or low cost, visit: http://www.iser.com/CAadvocacy.html

 

Relay Services
(800) 526-0857 (V)
(800) 526-0844 (TTY); 711 (TTY)
(877) 526-6690 (Speech to Speech)
Special Education
Illinois State Board of Education
Kate Anderson Foley, Ph.D.
Assistant Superintendent/State Director of Special Education
(217)-782-4870- Springfield
(312)-814-5560- Chicago

 

Special Format Library
Illinois State Library
Talking Book and Braille Service
401 E. Washington
Springfield, IL, 62701
(800) 665-5576 ext. 5 (in IL)
(217) 782-9435
(888) 261-5280 (TTY)
sruda@ilsos.net

 

Special Health Care Needs
Division of Specialized Care for Children
University of Illinois at Chicago
3135 Old Jacksonville Road
Springfield, IL, 62704-6488
(800) 322-3722

 

Speech, Language, and Hearing
Illinois Speech-Language-Hearing Association
35 East Wacker Dr., Suite 850
Chicago, IL  60601-2106
(312) 644-0828
ckeillor@bostrom.com

 

State Web Site
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:

 

Technical Support to Schools
Midwest PBiS Network
2900 Ogden Ave
Lisle, IL 60532
(630) 620-9032
support@midwestpbis.org

 

On Positive Behavior Interventions and Supports
Illinois Statewide Technical Assistance Center
PBIS Network
Chicago: (312) 814-2220
Springfield: (217) 782-4321

 

Transition Services
Illinois State Board of Education
Springfield
(217) 782-4321/(866) 262-6663
(312) 814-2220

 

UCEDD
Institute on Disability and Human Development (M/C 626)
Department of Disability and Human Development
University of Illinois at Chicago
1640 W. Roosevelt Road
Chicago, IL, 60608
(312) 413-1647

 

DRS-Jobs
Division of Rehabilitation Services
Department of Human Services
Check website for local offices

 

Other
Pathways Awareness
150 N. Michigan Avenue, Suite 2100
Chicago, IL, 60601
(800) 955-2445
(800) 326-8154 (TTY)
friends@pathways.org

 

Wrightslaw–  wrightslaw.com
Special Education law and Advocacy – Sign up for the Special Ed Advocate (It is Free and very helpful)
Wrightslaw is leading website about special education law and advocacy with thousands of articles, cases, and free resources about hundreds of special needs information on IEP, 504.etc.

 

COOPERATIVE SCHOOLS

 

NSSEO
Northwest Suburban Special Education Organization
799 W. Kennisgton
Mt. Prospect, IL  60056
(847) 463-8100

 

North Suburban Education Cooperative
TRUENORTH EDUCATIONAL COOPERATIVE 804
760 Red Oak Lane
Highland Park, IL  60035
(847) 831-5100

 

Special Education of Lake County IL
18160 Gages Lake Rd
Grayslake, IL  60030
(847)548-8470
CASE-DuPage
Cooperative Association for Special Education
22W600 Butterfield Rd
Glen Elly, IL 60137
(630)942-5600

 

LADSE
La Grange Area Department of Special Education
1125 Harrison Ave
LaGrange Park, IL  60526
(708)352-1163

 

NDSEC
North Du Page Special Education Cooperative
132 Pine Ave,
Roselle, IL  60172
(630)894-0490

 

NWSE
Northwest Special Education Cooperative – JoDaviess, Stephenson and Carroll counties
310 N. West Street
Elizabeth, IL 61028
(815)599-1947

 

MVSEC
Mid-Valley Special Education
1304 Ronzheimer Ave
St. Charles, IL 60174
(331)228-4873

 

A.E.R.O. Special Education Cooperative
5400 W. 77th St.
Burbank, IL 60459
(708)496-3330

 

Special Recreation Associations- Day Camps/programs

 

NWSRA
Northwest Special Recreation Association
3000 W. Central Rd
Rolling Meadows, IL 60008
(847)392-2848

 

SWSRA
South West Special Recreation Association
12521 S. Kostner
Alsip, IL  60803
(708)389-9423

 

WDSRA
Western DuPage Special Recreational Association
116 N. Schmale Road
Carol Stream, IL  60188
(630)681-0962

 

WSSRA
West Suburban Special Recreation Association
2915 Maple St
Franklin Park, IL 60131
(847)455-2100

 

SSSRA
South Suburban Special Recreation Association
19910 80th Ave
Tinley Park, IL
(815)806-0384

 

NIRSA
Northern Illinois Special Recreation Association
285 Memorial Dr
Crystal Lake, IL 60014
(815)459-0737