Our work at PRISMS would not be possible without the expertise of our amazing Professional Advisory Board, also known as the PAB.
The PAB consists of ten individuals representing the diverse needs of the Smith-Magenis syndrome (SMS) community. It is an internationally recognized group of scientists, educators, and clinicians with expertise in SMS, genetics, molecular research, education, speech, development, and caregiver and sibling concerns. Most PAB members are actively involved in research and/or clinical activities related to Smith-Magenis syndrome.
The PAB advises the PRISMS Board of Directors on medical, scientific, educational, and therapeutic matters, and assists in the education and research activities of the organization.
All of the resources that we publish are reviewed by these experts in SMS to ensure that they are of the highest quality. This is how you know you can trust information from PRISMS!
Some of the key online resources our PAB has contributed to are:
- Smith-Magenis Syndrome GeneReviews
- PRISMS Medical Management Guidelines & Treatment Recommendations
- Our Living with SMS articles
As well as the incredible On the Road to Success with SMS book, available for purchase through the PRISMS Store.
In addition to this, if you’ve ever asked us a question through the Contact Us form, we probably checked with an advisory board member before we gave you the answer!
The PAB also provides input behind the scenes on PRISMS’ programs, developing questionnaires for the SMS Patient Registry, reviewing grant applications, and reviewing potential research opportunities for the SMS and PRISMS community. The PAB looks forward to the 2023 virtual SMS Research Symposium this Fall where current research related to SMS will be presented and research goals for the community discussed in an open format.
The PRISMS Professional Advisory Board is an incredible asset to our Smith-Magenis syndrome community, and we are so lucky to have these professionals on our side. They are a key component in making PRISMS a leading resource for families and professionals looking for information about SMS. We could not do this work without them!
Thank You to Our PAB!
If you are interested in supporting the work of our Professional Advisory Board, donate here. We hope you will join us in making a difference!