SMS Clinics
THE PRISMS CLINIC AND RESEARCH CONSORTIUM (PCRC) IS DESIGNED TO EXPAND THE AVAILABILITY OF COMPREHENSIVE, CLINICALLY APPROPRIATE CARE FOR THE SMS COMMUNITY.
PRISMS Clinic and Research Consortium (PCRC)
Clinics within the PCRC provide multi-specialty, comprehensive and compassionate care for patients with SMS. The clinics provide families an opportunity to receive medical and clinical care and/or treatment recommendations that they can carry home to their local providers of care and that address the challenges and health concerns associated with SMS. The clinics’ approach to care includes consultation with other treatment specialists as needed while developing a plan of care for each patient that strives for health and well-being.
Families should be aware that each clinic is unique and do not necessarily offer identical services. If you have questions about selecting the most appropriate clinic for your child’s specific needs, please reach out to us for assistance. In addition, we encourage parents and other caretakers to clearly communicate their needs and expectations to clinic staff in advance of their initial appointment. Lastly, you should be aware that some, if not all, clinics may offer a telemedicine option in lieu of in-person clinic visits.
For more information about the SMS clinics, please check out the new PCRC brochure available for download.
SMS Clinic Travel Fund Reimbursement Program
The PRISMS SMS Clinic Travel Fund Reimbursement Program supports families who need to travel to one of the clinics within the PCRC. This fund will help defray costs for travel, (airline or mileage support), lodging costs or other miscellaneous costs attributed to traveling to a clinic. This reimbursement is available to a family only one time. Please email us to request information and an application.
“As parents, we have to do what is best for our children, even if it means traveling 8 plus hours to see specialists. I am so thankful we did.”
– Jana Johns, mom to Kenzi
Clinics by State
CALIFORNIA
San Diego
Pediatric Neurology/Smith-Magenis Clinic
Rady Children’s Hospital
Address:
3030 Children’s Way
San Diego, CA 92123
Ages Seen: All
Clinic Director: Dr. Gail Reiner, DNP, FNP-C
Physician Consultant: Kristen Wigby, MD
Clinic Coordinator: Janice Balagtas
Email: gereiner@health.ucsd.edu
Phone: (858) 966-5819
Web: https://www.rchsd.org/
FLORIDA
Gainesville
UF Center for Autism and Neurodevelopment Smith-Magenis Syndrome Clinic
Address:
4197 NW 86th Terrace, 3rd Floor
Gainesville, FL 32606
Ages Seen: All
Clinic Director: Kerri Peters, PhD, BCBA-D & Timothy Vollmer, PhD, BCBA-D
Medical Director: Takahiro Soda, MD, PhD, FAPA
Clinic Coordinator: Mary Kleckner, MSW
Email: UFCAN-Assessments@ad.ufl.edu
Phone: (352) 265-9177
Web: https://ufhealth.org/locations/uf-health-center-for-autism-and-neurodevelopment
ILLINOIS
Chicago
Smith-Magenis Clinic
Rush University Medical Center
Address:
1725 W. Harrison Street, Suite 718
Chicago, IL 60612
Ages Seen: Children and Adults
Medical Director: Elizabeth Berry-Kravis, MD, PhD
Clinic Coordinator: Angel Wang
Email: angel_wang@rush.edu
Phone: (312) 942-4036
Web: https://www.rush.edu/
MASSACHUSETTS
Lexington (Greater Boston)
Lurie Center for Autism
Massachusetts General Hospital/MassGeneral Hospital for Children
Address:
1 Maguire Road
Lexington, MA 02421
Ages Seen: All
Medical Director: Ann Neumeyer, MD
Email: LurieCenter@partners.org
Phone: (781) 860-1730
Web: https://www.luriecenter.org
OHIO
Lexington (Greater Boston)
Cincinnati Children’s Hospital Neurobehavioral Psychiatry Clinic – Smith-Magenis Syndrome
Address:
5642 Hamilton Avenue
Cincinnati, OH 45224
Ages Seen: Children (0-17.5 years old)
Medical Director: Katie Harris, MD
Email: neurobehavioral.clinic@cchmc.org
Phone: (513) 636-6553
Web: https://www.cincinnatichildrens.org/
PENNSYLVANIA
Lewisburg
Geisinger SMS Clinic
Geisinger Department of Developmental Medicine
Address:
120 Hamm Drive
Lewisburg, PA 17837
Ages Seen: Children and Adults
Clinic Director: Barbara Haas-Givler, MEd, BCBA
Medical Director: Thomas Challman, MD
Clinic Coordinator: Megan Zieber, MS, MPH, LGC
Email: mzieber@geisinger.edu
Phone: (570) 551-6968
Web: https://www.geisingerdevmed.org/
TENNESSEE
Memphis
St. Jude/LeBonheur SMS Clinic
St. Jude Children’s Research Hospital
Address:
262 Danny Tomas Place
Mailstop 760
Memphis, TN 38105
Ages Seen: 0-30/Older patients by telemedicine
Clinic Director: Andrea Gropman, MD
Medical Director: Andrea Gropman, MD
Clinic Coordinator: Jean Laboe, MSN, RN
Email (for appointments): Jean.Laboe@StJude.org
Phone: (901) 595-1693
Fax: (901) 595-1211
Web: https://www.stjude.org/
TEXAS
Houston
Smith-Magenis Syndrome Clinic
Texas Children’s Hospital
Address:
6701 Fannin St. 16th Floor
Houston, TX 77030
Ages Seen: All
Clinic Director: Rachel Franciskovich, MS, CGC
Medical Director: Lorraine Potocki, MD, FACMG
Clinic Coordinator: Rachel Franciskovich, MS, CGC
Email: smsclinic@texaschildrens.org
Phone: (832) 822-2100
Web: https://www.texaschildrens.org/
WASHINGTON, DC
Washington, DC
Smith-Magenis Multidisciplinary Clinic
Children’s National Hospital
Address:
Takoma Theater
6833 4th Street NW
Washington, DC 20012
Ages Seen: 6 mos. to 65 yrs.
Medical Director (acting): Sinan Omer Turnacioglu, MD
Clinic Coordinator: Srika Amin, MMSc, CGC
Email: samin@childrensnational.org
Phone: (202) 476-6249
Web: https://childrensnational.org/departments/center-for-neuroscience-and-behavioral-medicine/programs-and-services/neurogenetics-program