Publication and Resources
PRISMS serves as the leading resource for information on Smith-Magenis syndrome (SMS), providing guidebooks and curated external resources to support the needs of the community we serve.
These guidebooks are written by members of the PRISMS Professional Advisory Board, parents of individuals with SMS, and support staff from PRISMS. The PRISMS guidebooks offer firsthand experience and expertise from professionals and families who have worked with and cared for individuals with SMS. The books are an invaluable resource that address the lifelong challenges associated with SMS.
Publications
A Guidebook on Emotional and Behavioral Challenges in Smith-Magenis Syndrome
PRISMS Publication by: Barbara Haas-Givler, Rebecca Foster, Christine Brennan, Kerry Boyd, Hanna Hildenbrand, Mary Beall, and Cora Taylor
A Guidebook for Families Newly Diagnosed with Smith-Magenis Syndrome
PRISMS Publication by: Leah Baigell, Barclay Daranyi, Melissa Haley and John Mayer
On the Road to Success with SMS: A Smith-Magenis Guidebook for Schools
PRISMS Publication by: Barbara Haas-Givler & Brenda Finucane
A Smith-Magenis Guidebook: Exploring Adult Residential Living
PRISMS Publication by: Deborah Wehrlen, John Mayer, Leah Baigell, Barclay Daranyi, Mary Beall, Brandon Daniel, Emily Fields
RESOURCES
SMS
Additional Resources
Smith-Magenis Syndrome GeneReviews
Authored by PRISMS Professional Advisory Board
PRISMS Resources
Click on a topic below to learn more.
Behavior
Medical Management & Medication
SMS Clinics
Newly Diagnosed
Education
SMS Guidebook
Constipation
Birt-Hogg Dubé and SMS
AVAILABLE TRANSLATIONS
On the Road to Success with SMS: A Smith-Magenis Guidebook for Schools
The “On the Road to Success with SMS: A Smith-Magenis Guidebook for Schools” is available in digital form via Kindle. If you do not own a Kindle, there is a free Kindle Reading app that will allow you to purchase and download the resource for other mobile devices and computers. If you are interested in working with PRISMS to translate the publication into additional languages, please contact us at in**@****ms.org.
You can also purchase a paperback version of the “On the Road to Success with SMS: A Smith-Magenis Guidebook for Schools” book. Books are $25 plus shipping. To order copies of the book, please visit our store.
If you have any questions or issues with your online order, please contact us at in**@****ms.org.