The Work

PRISMS believes education empowers.

We support education in a variety of ways, including:

• Maintaining www.prisms.org, the most comprehensive resource dedicated to Smith-Magenis syndrome
• Authoring a monthly newsletter containing the latest information about new research developments, family meet-ups, gatherings and organizational activities
• Publishing resources including “On the Road to Success with SMS: A Guidebook for Schools” (available in 5 translations) and “A Smith-Magenis Syndrome Guidebook: Exploring Adult Residential Settings”
• Providing telephone/email and regional rep support for families
• Hosting an international educational and family support conference; the biennial event is the largest conference dedicated to Smith-Magenis Syndrome
• Connecting SMS families around the world through the Regional Representative program

PRISMS believes awareness creates understanding and opportunity.

We support awareness in a variety of ways, including:

• Organizing and implementing large annual SMS awareness campaigns, including PRISMS Birthday (Feb. 4), Rare Disease Day (Feb. 28/29), and participating in SMS Awareness Day (Nov. 17)
• Creating and distributing SMS awareness materials, including informational brochures, bookmarks, wristbands, and awareness/compassion cards
• Facilitating social media campaigns through Facebook, X, and Instagram

PRISMS believes research leads to answers.

We support research in a variety of ways, including:

• Assembling a Professional Advisory Board comprised of the leading medical and scientific experts in Smith-Magenis syndrome
• Investing in research through funding of the PRISMS Smith-Magenis Syndrome Patient Registry, support of junior researchers through the Summer Scholar program, scholarships for graduate students to attend an SMS research event, and more
• Sponsoring and hosting the International Smith-Magenis Syndrome Research Symposium, the only event of its kind focused on SMS, supporting the advancement of research for the entire SMS community 
• Promoting family access to current opportunities to participate in ongoing SMS research studies 
• Maintaining a database of registered Smith-Magenis Syndrome families

Annual Reports

At PRISMS, we are committed to complete transparency by making our financial records and programmatic operations open to the public for review and inspection. It is our responsibility to ensure funds received facilitate our ultimate goals of support and research in service to the SMS community.