Family Stories
Share Your Story
Thank you for your interest! Lean more about how you can share your story.
PRISMS Blog

In memory of Brian’s remarkable life, the Memorial Fund was established to recognize and support a unique group: siblings of those affected by Smith-Magenis Syndrome. These individuals walk a path shaped by both challenge and love. The Fund seeks to honor siblings who, like Brian, demonstrate empathy, resilience, and a profound sense of responsibility—not just within their families, but within the wider SMS and PRISMS communities.

Janet Wagner is a strong advocate for people with disabilities having access to community programs. She was insturmental in helping to save the Maryland LISS program from budget cuts. Her son, Cooper, is one of many IDD individuals who benefits from this funding.

Most people think that because I sit on the PRISMS Board that I was the one who found PRISMS after our son’s diagnosis. The truth is, it was my husband, Brian, who found PRISMS and encouraged me to become an active member of the SMS community.
No results found.
