For the Parent or Caregiver
PRISMS is dedicated to supporting you with the most trusted information and caring guidance, shared by our professionals and parents who have walked this same path and are ready to stand beside you.
WE’RE HERE FOR
YOU
WE’RE HERE FOR YOU
Finding out that your child has a genetic condition can be extremely challenging. The diagnosis can seem overwhelming, filling you with uncertainty and dread for the future. You are embarking on a difficult journey, but one that is also rewarding. Life does not stop with the diagnosis of Smith-Magenis syndrome (SMS). Life will be different, but not without many of the same joys and challenges that all parents feel in their children’s lives.
You will learn that children and adults with SMS pose many developmental and behavioral challenges. As a parent/caregiver, you will encounter difficult times, but also times that are joyful, humorous, and never boring.
On this website, you will find many resources to help you better understand your child and get the support you need to help guide them to their fullest potential.
You are not alone!
Resources for You
Get Connected
You are not alone. Connect with PRISMS to stay up to date with the latest news about SMS and connect with other parents and caregivers of individuals with SMS.
Newly Diagnosed
We understand it can be overwhelming trying to process the diagnosis, understand a new challenging vocabulary, and come to terms with the ways in which this diagnosis will affect you, your loved one, and your family.
Early Intervention
Children with Smith-Magenis syndrome typically face delays in specific development areas. Early intervention is highly recommended and has proven successful for many individuals with SMS and their families.
Be a Part of Research
Research leads to answers. You and your loved one with SMS can help to advance research for the community by participating in one of our active research opportunities.
Attend the Conference
PRISMS hosts a biennial conference for the SMS community complete with opportunities to network and share with other families and engage and learn from professionals and researchers from around the world.
Frequently Asked Questions
Understanding and navigating life with Smith-Magenis Syndrome can be complex—but you don’t have to do it alone. Our FAQs offer quick answers to common questions about SMS, available services, and how PRISMS supports families and professionals.