Awareness
PRISMS IS DEDICATED TO HELPING RAISE AWARENESS ABOUT SMITH-MAGENIS SYNDROME.
RAISING AWARENESS AMONG FRIENDS, NEIGHBORS, FAMILY, PHYSICIANS, EDUCATORS, AND OTHERS IS HOW WE BUILD UNDERSTANDING AND SUPPORT FOR OUR RARE COMMUNITY.
Why Awareness Matters
01
EARLY DIAGNOSIS
Increased awareness among healthcare professionals and the broader public is critical to mitigating prolonged diagnostic delays, which frequently extend over several years.
02
IMPROVED RESEARCH FUNDING
Rare diseases receive less research investment. Increased awareness drives stronger advocacy and greater funding for vital research.
03
COMMUNITY SUPPORT
Patients and families affected by Smith-Magenis syndrome often feel isolated. Raising awareness fosters a stronger, more informed community of care and understanding.
SMS AWARENESS
How You Can Help
EDUCATION: Educate yourself and others about Smith-Magenis syndrome.
SUPPORT RESEARCH: Donate to research efforts and participate in active research studies.
PROMOTE AWARENESS: Share information on social media, host awareness events or fundraisers, or invite experts to speak at community gatherings.
ADVOCATE FOR POLICY CHANGE: Engage with policymakers to advance legislation that improves access to critical care, research funding, and safeguards for those with rare diseases.
Host a Fundraiser to Support PRISMS
PRISMS depends on the dedication and enthusiasm of our community to continue advancing our mission. Your support enables us to grow and sustain vital programs focused on education, awareness, and research of Smith-Magenis syndrome.
Fundraising is essential to PRISMS’ impact. It strengthens our programs, lowers conference costs for families, and funds innovative SMS research.
Are you planning or are you interested in running a fundraiser? Email info@prisms.org and let us help you with your event.
SMS AWARENESS
Awareness Materials
Raise awareness for Smith-Magenis syndrome with free materials from PRISMS.
We offer brochures, bookmarks, compassion cards, and wristbands at no cost to families and friends. While these resources are free, they do carry production and shipping costs. If you’re able, please consider a donation to help support this initiative.
To request materials, email info@prisms.org. All items must be used in accordance with PRISMS’ Terms of Use.
Smith-Magenis Syndrome Awareness Day
November 17 is SMS Awareness Day — a time to unite and shine a light on Smith-Magenis syndrome. Each year, PRISMS joins the global SMS community to promote awareness, share knowledge, and foster understanding of this rare genetic syndrome.
Throughout November, we invite you to take action, raise your voice, and spread awareness and understanding of Smith-Magenis syndrome.
PRISMS offers a number of resources to support your efforts in promoting SMS Awareness Day. PRISMS is proud of the strong SMS community we have around the world and we are looking forward to seeing and hearing about your SMS Awareness Day stories and events.
Real Stories. Shining Light. Lasting Impact.
Meet individuals living with Smith-Magenis syndrome; their journeys highlight the resilience of the human spirit and the need for awareness and action.
Shop PRISMS
Visit our online store to help raise awareness in your community by wearing the latest Smith-Magenis Syndrome gear! Even better—every purchase supports PRISMS and advances our mission. We update our inventory throughout the year, so check back often for new apparel and SMS swag.
Get Involved
Want to get involved with PRISMS? Check out our upcoming events!