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Our son, Liam, 12, was nominated by his paraprofessional educator, Jane (who worked with him all through elementary school) as the Special Fester for Oktoberfest 2022. We have lived in La Crosse for 20 years and of course, we knew of Oktoberfest, but I had never really attended anything other than the Torchlight Parade. We didn't even know when he was selected for Special Fester that he had Smith-Magenis syndrome as we were still waiting on genetic test results. He was just diagnosed this year.
This year PRISMS marks 30 years of serving the Smith-Magenis syndrome community. This wonderful community includes persons with SMS, parents and family members, professionals, and our advocacy partners. What began as a small group of four, (who are the founders of PRISMS), has thrived into a vast global community that continues to magnify the mission of PRISMS in its outreach and endeavors.
The PRISMS journey is ongoing as new families receive their diagnosis and join our community each year. The PRISMS mission continues with the help and support of countless volunteers and donors that support the PRISMS mission. Without today’s volunteers, families and donors, we could not continue this mission. On behalf of the PRISMS Board of Directors, thank you for your ongoing commitment and financial support of PRISMS! Here is to the next 30 years!
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