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PRISMS Blog
The 11th PRISMS International Conference brought together the Smith-Magenis syndrome (SMS) community for three days of connection and education. It Is the largest conference specifically focused on SMS in the world. With 313 registrants, 167 first-time attendees, 62 presenters, 51 SMS individuals, 34 family scholarship recipients, and 12 teacher/support staff recipients, the Hyatt Regency in Dallas, Texas, was filled with our SMS community.
We’re new to the SMS Community, but have been looking for answers for our daughter since she was about 10 months old. So, while we’ve been in the game of therapy, testing, waiting, begging, asking, worrying, searching and all the other things that describe life with a special need’s kiddo; we’ve just recently found our place of belonging. Kaydence FINALLY got diagnosed in March or 2021- smack dab in the middle of COVID.
PRISMS is pleased to announce the online publication of its first in a series of family-friendly treatment recommendations. This series is designed to provide essential information to parents, caretakers and other professionals who may be providing services to the individual with SMS but who are not SMS experts.
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