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PRISMS Blog
The PRISMS journey is ongoing as new families receive their diagnosis and join our community each year. The PRISMS mission continues with the help and support of countless volunteers and donors that support the PRISMS mission. Without today’s volunteers, families and donors, we could not continue this mission. On behalf of the PRISMS Board of Directors, thank you for your ongoing commitment and financial support of PRISMS! Here is to the next 30 years!
I love helping families who are newly diagnosed. I enjoy talking to families who have questions and providing them with information as best as I can. I do not have all the answers but I am happy to brainstorm and help folks in any way.
I was the original Regional Rep…but my region was the whole world! At the time we called the program Parent to Parent. I kept a list of parents who were willing to be contacted, and whenever we got a new PRISMS member, I would call them and chat to see what they needed. Then I tried to connect them to another parent, either in their area or someone who had a child the same age. So I’m not sure how long ago I started, but I know it’s been more than 20 years.
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