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PRISMS Blog
The PRISMS Professional Advisory Board (PAB) consists of 10 individuals representing the diverse needs of the SMS community. It is an internationally recognized group of basic scientists, educators, and clinicians with expertise in SMS, genetics, molecular research, education, speech, development, and caregiver and sibling concerns. Most PAB members are actively involved in research and/or clinical activities related to Smith-Magenis Syndrome.
Our son, Liam, 12, was nominated by his paraprofessional educator, Jane (who worked with him all through elementary school) as the Special Fester for Oktoberfest 2022. We have lived in La Crosse for 20 years and of course, we knew of Oktoberfest, but I had never really attended anything other than the Torchlight Parade. We didn't even know when he was selected for Special Fester that he had Smith-Magenis syndrome as we were still waiting on genetic test results. He was just diagnosed this year.
This year PRISMS marks 30 years of serving the Smith-Magenis syndrome community. This wonderful community includes persons with SMS, parents and family members, professionals, and our advocacy partners. What began as a small group of four, (who are the founders of PRISMS), has thrived into a vast global community that continues to magnify the mission of PRISMS in its outreach and endeavors.
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