by PRISMS | Feb 23, 2024 | Awareness, Home Page, SMS Blog
By: Hayley, mom to Carter Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. A-year-and-a-half ago we...
by PRISMS | Feb 21, 2024 | Awareness, Home Page, SMS Blog
By: Scotti Taylor, mom of Drew, 22 Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. About a...
by PRISMS | Dec 19, 2023 | Awareness, Home Page, SMS Blog
By: Shelia Hernandez-Hale, PRISMS Regional Representative Puerto Rico On Smith-Magenis Awareness Day on November 17th, Shelia Hernandez-Hale, PRISMS Regional Representative for Puerto Rico, engaged in various activities to spread awareness of Smith-Magenis...
by PRISMS | Nov 9, 2023 | Awareness, Home Page, SMS Blog
By: Luke Schumacher, Dad to William It was March 22, 2023. I was on a flight to San Diego. The trip was intended as a getaway after a challenging winter with our son, Will. He was eighteen months old at the time, and despite his failure to meet developmental...
by PRISMS | Oct 27, 2023 | Awareness, Home Page, SMS Blog
By: Courtney Hamilton, sister of Isabella McFee As I finally tightly squeezed my siblings’ goodbye, my parents asked once more “Are you sure you don’t need anything?” I could feel tears welling up in my eyes. It was time for me to go live my life at college and...
