by PRISMS | Nov 4, 2021 | Awareness, Home Page, SMS Blog
[vc_row][vc_column][vc_column_text] Caroline “Callie” is 15 years old freshman at Mason High School in Ohio. Her brother Will is 16 months older and has Smith-Magenis syndrome. Callie and Will are very close. Callie’s mom, Amy, refers to Will as Callie’s...
by PRISMS | Sep 3, 2021 | Awareness, Home Page, SMS Blog
By: Michelle Larscheid, PRISMS Program Assistant We are back! Back together to socialize, catch up, find support, raise money, and most importantly, hug each other! This summer was the perfect opportunity to...
by PRISMS | Jul 14, 2021 | Awareness, Home Page, SMS Blog
By: Diane Erth, PRISMS Board Member Planning a road trip can be exciting and fun but when your road trip includes a child with SMS, much more planning is needed. Here is a bit about a trip we took recently and what I did to ensure it would be a hit! As many of you...
by PRISMS | Jun 3, 2021 | Awareness, Home Page, SMS Blog
By: Kevin Sanford, SMS Sibling My sister, Jenavieve (Jena), 20, graduated this Spring with an Early Childhood Development Advanced Certification in a virtual graduation ceremony from a local community college. Jena was diagnosed with SMS at 9 years old. She has had...
by PRISMS | Apr 26, 2021 | Awareness, Home Page, SMS Blog
Frank Tra, PRISMS member from Wichita, KS, wrote a picture book entitled “Masterpiece Robot and the Ferocious Valerie Knick-Knack” that was published by Tilbury Press. Each character in the book is based on one of his children. What you might not be able to tell...
by PRISMS | Feb 23, 2021 | Awareness, Home Page, SMS Blog
Going to the skate park with his respite worker was just a fun, every day outing for Embry, age 7. That is, until Embry caught the eye of TikTok influencer @Jordan.Roy. Jordan took a video of Embry riding his scooter, doing tricks, falling down and getting...