by PRISMS | Apr 12, 2022 | Awareness, Home Page, SMS Blog
By: Jason Michaud We have all heard the term, “For the love of the game”, where a sport is played purely for the joy it brings to one’s life. This past February in Strathcona County, Alberta, Canada, two brothers Ryan (13) and Nikolas (11) Michaud used their love of...
by PRISMS | Apr 6, 2022 | Awareness, Home Page, SMS Blog
By: Michelle Larscheid, Program Coodinator Erik Murdock is a typical high school junior in New York. He is busy studying for the SAT, going on college visits, and working on a fundraiser for his school. Erik has two sisters, Sarah (21) and Amy (18). Amy has...
by PRISMS | Apr 1, 2022 | Awareness, Home Page, SMS Blog
By: Kevin DuBois, SMS Dad and Children’s Book Author Do you have a “comfort tree”? A person you lean on who is always there to help, support, and believe in you no matter what? I don’t think I truly realized how much my daughters depended on each other until...
by PRISMS | Feb 24, 2022 | Awareness, Home Page, SMS Blog
By Aurielle Karr Aurielle Karr was diagnosed with SMS when she was 9 years old. Aurielle shares the story of her road with SMS so far: I was diagnosed with SMS when I was nine years old. I had a great time in elementary school but when I reached middle school and high...
by PRISMS | Feb 24, 2022 | Awareness, Home Page, SMS Blog
By: Michelle Larscheid On Friday, February 11, Jenna Hale rushed home from school with excitement and put on a very special dress. Her mom, Charlotte Hale, fixed her hair and make-up. On the way out the door, she took photos with her dad and then they drove to the...
by PRISMS | Jan 31, 2022 | Awareness, Home Page, SMS Blog
It is estimated that 30 million people in the United States, or 1 in 10, are living with a rare medical condition. Medical professionals often do not receive training to recognize a patient with one of the nearly 8,000 identified rare diseases. When a medical...
