by PRISMS | Nov 23, 2022 | 30th Anniversary, Awareness, Home Page, Research, SMS Blog
By: Maggie Miller On December 1, 2020, the Food and Drug Administration (FDA) approved the use of HETLIOZ® (tasimelteon) capsule and liquid formulations for the treatment of adults and children, respectively, with nighttime sleep disturbances associated with...
by PRISMS | Oct 26, 2022 | Awareness, Home Page, SMS Blog
By: Haley Rupp My name is Haley and I am 23 years old, the youngest of three children. My oldest sister, Kristen, is 29, and right in the middle of us is Carley, who is 27 and is diagnosed with Smith-Magenis syndrome. Growing up, Carley always created exciting energy...
by PRISMS | Oct 19, 2022 | Awareness, SMS Blog, Uncategorized
By: Jean Bishop Nico, 15-year-old SMS, has always been obsessed with fire safety. He loves smoke detectors, fire alarms, fire drills, etc. He often is carrying a fire alarm or smoke detector around with him to demonstrate the alarm for one and all. Nico traveled...
by PRISMS | Sep 27, 2022 | Awareness, Education, From PRISMS, Home Page, Newly Diagnosed, SMS Blog
By: Michelle Larscheid, Program Coordinator The 11th PRISMS International Conference brought together the Smith-Magenis syndrome (SMS) community for three days of connection and education. It Is the largest conference specifically focused on SMS in the...
by PRISMS | May 20, 2022 | Awareness, Home Page, SMS Blog
By: Michelle Larscheid, Program Coordinator Someone once said, “Extraordinary things are always hiding in places people never think to look.” Children with Smith-Magenis Syndrome surprise us with their incredible abilities, talents, and personalities every...
by PRISMS | Apr 19, 2022 | Awareness, Home Page, SMS Blog
By: Suzanne Sorenson, Colton’s Mom Being a parent of a child with Smith Magenis Syndrome (SMS) is a roller coaster. Being a parent, in general, can feel the same, but as a special needs parent, the typical traditional rights of passage and everyday milestones...
