by PRISMS | Aug 29, 2023 | 30th Anniversary, Awareness, SMS Blog, Uncategorized
A Q&A with PRISMS Community Fundraisers By: Jackie Fallenstein – PRISMS Board Member-at-Large One of the ways PRISMS members and friends support our mission is by holding fundraisers in their local communities. In 2022, these fundraisers raised over $60,000 for...
by PRISMS | Aug 10, 2023 | 30th Anniversary, From PRISMS, Home Page
Rare diseases like Smith-Magenis syndrome may affect a small number of individuals, but their impact can be devastating. These conditions are characterized by their scarcity, which poses unique challenges for research, diagnosis, and treatment. However, one of the...
by PRISMS | Jul 24, 2023 | 30th Anniversary, From PRISMS, Home Page
PRISMS is proud to announce a new addition to the Board of Directors, Eric Rogers. Eric will serve as a Member-At-Large. Eric and his wife Jessica live in Mount Juliet, TN with their son Wyatt (9) who has SMS, and daughter Adelyn (5). Eric attended Cumberland...
by PRISMS | Jun 20, 2023 | 30th Anniversary, From PRISMS, Home Page
The new 2022 PRISMS Annual Report has just been released. The annual report highlights all the hard work and achievements that have been accomplished in the past year. At PRISMS, we are committed to complete transparency by making our financial records and...
by PRISMS | Apr 11, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Michelle Larscheid Kevin Sperry didn’t realize the neighbor boy from down the street, who knocked on his door over 5 years ago and asked if he could go for a walk, would become his best friend. That best friend is Coulter Daniel. Sperry said he knew Coulter...
by PRISMS | Mar 22, 2023 | 30th Anniversary, From PRISMS, Home Page, SMS Blog
Our work at PRISMS would not be possible without the expertise of our amazing Professional Advisory Board, also known as the PAB. The PAB consists of ten individuals representing the diverse needs of the Smith-Magenis syndrome (SMS) community. It is an...
