by PRISMS | Feb 20, 2023 | 30th Anniversary, Awareness, SMS Blog, Uncategorized
By: Kimberly Caulkins Every year since 1961 the city of La Crosse, Wisconsin holds a traditional German Oktoberfest. Born in Munich in the 19th century, Oktoberfest first made its way to La Crosse in 1961. What started as a simple community event has turned into...
by PRISMS | Feb 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Maggie Miller, Vice President PRISMS Board of Directors and Co-Founder, PRISMS This year PRISMS marks 30 years of serving the Smith-Magenis Syndrome (SMS) community. This wonderful community includes persons with SMS, parents and family members, professionals, and...
by PRISMS | Feb 1, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Brandon Daniel, PRISMS Board President It is hard to believe it has been 30 years since the founding of PRISMS! In some ways that seems like a long time ago and in other ways it does not seem that long ago at all. When I think of PRISMS, I think about my first...
by PRISMS | Jan 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
Can you tell us a little bit about yourself, your family, and your SMS individual? My husband, Randy, and I live in Dallas, Texas, and raised our daughters here. Our younger daughter, Jenny, now lives in Denver with her husband and 4 children. Our oldest child, Laura,...
by PRISMS | Nov 23, 2022 | 30th Anniversary, Awareness, Home Page, Research, SMS Blog
By: Maggie Miller On December 1, 2020, the Food and Drug Administration (FDA) approved the use of HETLIOZ® (tasimelteon) capsule and liquid formulations for the treatment of adults and children, respectively, with nighttime sleep disturbances associated with...
by PRISMS | Jun 13, 2022 | 30th Anniversary, Education, From PRISMS, Home Page, SMS Blog
By Kayla Beecher Hello! I’m Kayla Beecher, mom to Kaydence Beecher, better known as KK! We’re new to the SMS Community, but have been looking for answers for our daughter since she was about 10 months old. So, while we’ve been in the game of therapy, testing, waiting,...
