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PRISMS Releases New “Strategies to Address Emotional and Behavioral Challenges in Smith-Magenis Syndrome” Guidebook

PRISMS Releases New “Strategies to Address Emotional and Behavioral Challenges in Smith-Magenis Syndrome” Guidebook

by PRISMS | Apr 28, 2024 | Clinics, Education, From PRISMS, Home Page, Research

PRISMS is pleased to announce another online publication in its series of family-friendly treatment recommendations. This series is designed to provide essential information to parents, caretakers, and other professionals who may be providing services to an individual...
Moving Care of SMS Forward

Moving Care of SMS Forward

by PRISMS | Nov 23, 2022 | 30th Anniversary, Awareness, Home Page, Research, SMS Blog

By: Maggie Miller On December 1, 2020, the Food and Drug Administration (FDA) approved the use of HETLIOZ® (tasimelteon) capsule and liquid formulations for the treatment of adults and children, respectively, with nighttime sleep disturbances associated with...
Constipation Treatment Recommendations for SMS

Constipation Treatment Recommendations for SMS

by PRISMS | Jun 6, 2022 | Clinics, Education, From PRISMS, Home Page, Research

By Robert Miller, Advisor on Clinic Relations PRISMS is pleased to announce the online publication of its first in a series of family-friendly treatment recommendations. This series is designed to provide essential information to parents, caretakers, and other...
PRISMS Supports SMS SibShop Study

PRISMS Supports SMS SibShop Study

by PRISMS | Dec 6, 2021 | From PRISMS, Home Page, Research, SMS Blog

By Michelle Larscheid, Program Coordinator PRISMS is excited to be funding Austin Burns, a 4th-year clinical psychology doctoral student at Saint Louis University, to work on developing an intervention for adolescent siblings of individuals with SMS. Dr. Rebecca...
Birt-Hogg-Dubé Symptoms in Smith-Magenis Syndrome: Survey Results

Birt-Hogg-Dubé Symptoms in Smith-Magenis Syndrome: Survey Results

by PRISMS | May 19, 2021 | Home Page, Research

Brenda Finucane, MS, CGCGeisinger Autism & Developmental Medicine Institute, Lewisburg, PA Thanks to strong participation by families in the PRISMS community, my colleagues and I completed a research survey on Birt-Hogg-Dubé syndrome (BHD) symptoms in people with...
PRISMS Welcomes New Professional Advisory Board Members

PRISMS Welcomes New Professional Advisory Board Members

by PRISMS | Oct 15, 2020 | From PRISMS, Research, SMS Blog

PRISMS Professional Advisory Board is comprised of some of the world’s foremost experts on Smith-Magenis Syndrome in a wide range of disciplines including speech and language, neurology, psychology, behavior, genetics and more. We are very excited to expand our...
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Recent Posts

  • Celebrating Grant Recipients of the Brian Pereira Memorial Fund
  • A Mother’s Determined Advocacy Saves a Much Needed Program From Budget Cuts
  • PRISMS Releases 2024 Annual Report
  • Honoring Brian Pereira: A Champion for Families, Siblings, and the SMS Community
  • A Story of Unexpected Generosity: How One Act of Kindness Changed the Lives of 18 Families

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PRISMS, Parents and Researchers Interested In Smith-Magenis syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis syndrome, sponsoring research, and fostering partnerships with professionals to increase awareness, understanding, and treatment of SMS.

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