Parents and Researchers Interested In Smith-Magenis Syndrome

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PRISMS Releases New “Strategies to Address Emotional and Behavioral Challenges in Smith-Magenis Syndrome” Guidebook

PRISMS Releases New “Strategies to Address Emotional and Behavioral Challenges in Smith-Magenis Syndrome” Guidebook

by PRISMS | Apr 28, 2024 | Clinics, Education, From PRISMS, Home Page, Research

PRISMS is pleased to announce another online publication in its series of family-friendly treatment recommendations. This series is designed to provide essential information to parents, caretakers, and other professionals who may be providing services to an individual...
The Power of Partnerships: Driving Rare Disease Research and Education Forward

The Power of Partnerships: Driving Rare Disease Research and Education Forward

by PRISMS | Aug 10, 2023 | 30th Anniversary, From PRISMS, Home Page

Rare diseases like Smith-Magenis syndrome may affect a small number of individuals, but their impact can be devastating. These conditions are characterized by their scarcity, which poses unique challenges for research, diagnosis, and treatment. However, one of the...
Welcome PRISMS Board Member Eric Rogers

Welcome PRISMS Board Member Eric Rogers

by PRISMS | Jul 24, 2023 | 30th Anniversary, From PRISMS, Home Page

PRISMS is proud to announce a new addition to the Board of Directors, Eric Rogers. Eric will serve as a Member-At-Large. Eric and his wife Jessica live in Mount Juliet, TN with their son Wyatt (9) who has SMS, and daughter Adelyn (5). Eric attended Cumberland...
PRISMS Releases 2022 Annual Report

PRISMS Releases 2022 Annual Report

by PRISMS | Jun 20, 2023 | 30th Anniversary, From PRISMS, Home Page

The new 2022 PRISMS Annual Report has just been released. The annual report highlights all the hard work and achievements that have been accomplished in the past year. At PRISMS, we are committed to complete transparency by making our financial records and...
What does the Professional Advisory Board do for PRISMS? 

What does the Professional Advisory Board do for PRISMS? 

by PRISMS | Mar 22, 2023 | 30th Anniversary, From PRISMS, Home Page, SMS Blog

Our work at PRISMS would not be possible without the expertise of our amazing Professional Advisory Board, also known as the PAB.  The PAB consists of ten individuals representing the diverse needs of the Smith-Magenis syndrome (SMS) community. It is an...
Envisioning the Possibilities Together

Envisioning the Possibilities Together

by PRISMS | Sep 27, 2022 | Awareness, Education, From PRISMS, Home Page, Newly Diagnosed, SMS Blog

By: Michelle Larscheid, Program Coordinator The 11th PRISMS International Conference brought together the Smith-Magenis syndrome (SMS) community for three days of connection and education. It Is the largest conference specifically focused on SMS in the...
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Recent Posts

  • Celebrating Grant Recipients of the Brian Pereira Memorial Fund
  • A Mother’s Determined Advocacy Saves a Much Needed Program From Budget Cuts
  • PRISMS Releases 2024 Annual Report
  • Honoring Brian Pereira: A Champion for Families, Siblings, and the SMS Community
  • A Story of Unexpected Generosity: How One Act of Kindness Changed the Lives of 18 Families

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PRISMS, Parents and Researchers Interested In Smith-Magenis syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis syndrome, sponsoring research, and fostering partnerships with professionals to increase awareness, understanding, and treatment of SMS.

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