by PRISMS | Jun 12, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog
By Amy Pereira, PRISMS Board Member I remember vividly 13 years ago when I was first introduced to PRISMS. Joey was just 15 months when we received his diagnosis and admittedly, I was lost and frantic. As a newly diagnosed parent, my life had...
by PRISMS | Apr 4, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog
Caring for a child with Smith-Magenis Syndrome most likely will be the most challenging and rewarding job you will ever have. You might feel as if you are the only person who can do the job and doubt that anyone else could meet your child’s needs the way you can....
by PRISMS | Sep 27, 2022 | Awareness, Education, From PRISMS, Home Page, Newly Diagnosed, SMS Blog
By: Michelle Larscheid, Program Coordinator The 11th PRISMS International Conference brought together the Smith-Magenis syndrome (SMS) community for three days of connection and education. It Is the largest conference specifically focused on SMS in the...
by PRISMS | Sep 7, 2018 | Awareness, Newly Diagnosed, SMS Blog
Trevor Gritman, Father to Boston (8) In 2010, my wife and I had our first son. We already had an amazing three-year-old daughter and then, we were getting a boy, I was beyond excited! I immediately started thinking about the cool things I was going to teach him and...
by PRISMS | Jan 21, 2018 | Awareness, Newly Diagnosed, SMS Blog
Amy Pereira, SMS mom to Joey Blogs…I read them…I find them helpful…but I’ve never attempted to write one. I am always in awe of the writers and how honest and real they are. I tend to find it hard to write about myself, and my son Joey specifically,...
