Parents and Researchers Interested In Smith-Magenis Syndrome

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Survival Tips for Caregivers

Survival Tips for Caregivers

by PRISMS | Apr 4, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog

Caring for a child with Smith-Magenis Syndrome most likely will be the most challenging and rewarding job you will ever have. You might feel as if you are the only person who can do the job and doubt that anyone else could meet your child’s needs the way you can....
SMS Teen Spreads Cheer as Special Fester for Oktoberfest Celebration

SMS Teen Spreads Cheer as Special Fester for Oktoberfest Celebration

by PRISMS | Feb 20, 2023 | 30th Anniversary, Awareness, SMS Blog, Uncategorized

By:  Kimberly Caulkins Every year since 1961 the city of La Crosse, Wisconsin holds a traditional German Oktoberfest. Born in Munich in the 19th century, Oktoberfest first made its way to La Crosse in 1961. What started as a simple community event has turned into...
Reflections on 30 Years of PRISMS

Reflections on 30 Years of PRISMS

by PRISMS | Feb 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog

By: Maggie Miller, Vice President PRISMS Board of Directors and Co-Founder, PRISMS This year PRISMS marks 30 years of serving the Smith-Magenis Syndrome (SMS) community. This wonderful community includes persons with SMS, parents and family members, professionals, and...
Happy 30th Anniversary PRISMS!

Happy 30th Anniversary PRISMS!

by PRISMS | Feb 1, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog

By: Brandon Daniel, PRISMS Board President It is hard to believe it has been 30 years since the founding of PRISMS! In some ways that seems like a long time ago and in other ways it does not seem that long ago at all. When I think of PRISMS, I think about my first...
Q&A with Regional Representative Leah Baigell

Q&A with Regional Representative Leah Baigell

by PRISMS | Jan 29, 2023 | Awareness, Home Page, SMS Blog

Can you tell us a little bit about yourself, your family, and your SMS individual? My name is Leah Baigell and along with my husband Henry, we have two boys – Max who is 33, and Zach, our 30 year old with SMS. Max married Havens and they have our 2 amazing...
Q&A with Regional Representative Mary Beall

Q&A with Regional Representative Mary Beall

by PRISMS | Jan 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog

Can you tell us a little bit about yourself, your family, and your SMS individual? My husband, Randy, and I live in Dallas, Texas, and raised our daughters here. Our younger daughter, Jenny, now lives in Denver with her husband and 4 children. Our oldest child, Laura,...
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Recent Posts

  • Celebrating Grant Recipients of the Brian Pereira Memorial Fund
  • A Mother’s Determined Advocacy Saves a Much Needed Program From Budget Cuts
  • PRISMS Releases 2024 Annual Report
  • Honoring Brian Pereira: A Champion for Families, Siblings, and the SMS Community
  • A Story of Unexpected Generosity: How One Act of Kindness Changed the Lives of 18 Families

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PRISMS, Parents and Researchers Interested In Smith-Magenis syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis syndrome, sponsoring research, and fostering partnerships with professionals to increase awareness, understanding, and treatment of SMS.

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