by PRISMS | Sep 4, 2024 | Awareness, Home Page, SMS Blog
By: Sharon Cook My name is Sharon Cook and I am the Nanna to Skyler, 17, who was diagnosed with SMS at birth. Skyler lives in North Idaho and I live most of the year in Baja Mexico, one of Skyler’s favorite places to come for an extended stay. We are in a small town...
by PRISMS | Mar 5, 2024 | Awareness, Home Page, SMS Blog
By: Christine Brennan, Ph.D., CCC-SLP University of Colorado Boulder, Department of Speech, Language, and Hearing Sciences, Boulder, CO A recent paper published in the American Speech-Language Hearing Association’s Journal of Speech, Language, and Hearing Research...
by PRISMS | Feb 29, 2024 | Awareness, Home Page, SMS Blog
By: Kayle Jansson, Mom of Embry Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Our journey with...
by PRISMS | Feb 28, 2024 | Awareness, Home Page, SMS Blog
By: Amy Studer, Mom of Reagan Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. Like all great...
by PRISMS | Feb 23, 2024 | Awareness, Home Page, SMS Blog
By: Hayley, mom to Carter Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. A-year-and-a-half ago we...