by PRISMS | Feb 21, 2024 | Awareness, Home Page, SMS Blog
By: Scotti Taylor, mom of Drew, 22 Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. About a...
by PRISMS | Dec 19, 2023 | Awareness, Home Page, SMS Blog
By: Shelia Hernandez-Hale, PRISMS Regional Representative Puerto Rico On Smith-Magenis Awareness Day on November 17th, Shelia Hernandez-Hale, PRISMS Regional Representative for Puerto Rico, engaged in various activities to spread awareness of Smith-Magenis...
by PRISMS | Nov 9, 2023 | Awareness, Home Page, SMS Blog
By: Luke Schumacher, Dad to William It was March 22, 2023. I was on a flight to San Diego. The trip was intended as a getaway after a challenging winter with our son, Will. He was eighteen months old at the time, and despite his failure to meet developmental...
by PRISMS | Jul 26, 2023 | Awareness, Home Page, SMS Blog
Can you tell us a little bit about yourself, your family, and your SMS individual? I am North Carolina born and raised, transplanted to Arizona since 1996. I earned a Bachelor of Science degree in elementary education from Appalachian State University and then a...
by PRISMS | Jul 11, 2023 | Awareness, Home Page, SMS Blog
By: Jana Johns Kenzi and our family traveled to Houston to the Texas Children’s Hospital SMS Clinic. It was very educational and worth the 8-hour trip plus stops. It was a fairly easy process to get started. I emailed the SMS Clinic at Texas Children’s in July and...
