Parents and Researchers Interested In Smith-Magenis Syndrome

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Volunteerism is Therapeutic for One SMS Mom

Volunteerism is Therapeutic for One SMS Mom

by PRISMS | Jun 12, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog

By Amy Pereira, PRISMS Board Member I remember vividly 13 years ago when I was first introduced to PRISMS.  Joey was just 15 months when we received his diagnosis and admittedly, I was lost and frantic.  As a newly diagnosed parent, my life had...
Beyond the Football Field, a Friendship is Forged 

Beyond the Football Field, a Friendship is Forged 

by PRISMS | Apr 11, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog

By: Michelle Larscheid Kevin Sperry didn’t realize the neighbor boy from down the street, who knocked on his door over 5 years ago and asked if he could go for a walk, would become his best friend. That best friend is Coulter Daniel. Sperry said he knew Coulter...
Survival Tips for Caregivers

Survival Tips for Caregivers

by PRISMS | Apr 4, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog

Caring for a child with Smith-Magenis Syndrome most likely will be the most challenging and rewarding job you will ever have. You might feel as if you are the only person who can do the job and doubt that anyone else could meet your child’s needs the way you can....
What does the Professional Advisory Board do for PRISMS? 

What does the Professional Advisory Board do for PRISMS? 

by PRISMS | Mar 22, 2023 | 30th Anniversary, From PRISMS, Home Page, SMS Blog

Our work at PRISMS would not be possible without the expertise of our amazing Professional Advisory Board, also known as the PAB.  The PAB consists of ten individuals representing the diverse needs of the Smith-Magenis syndrome (SMS) community. It is an...
Reflections on 30 Years of PRISMS

Reflections on 30 Years of PRISMS

by PRISMS | Feb 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog

By: Maggie Miller, Vice President PRISMS Board of Directors and Co-Founder, PRISMS This year PRISMS marks 30 years of serving the Smith-Magenis Syndrome (SMS) community. This wonderful community includes persons with SMS, parents and family members, professionals, and...
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Recent Posts

  • Celebrating Grant Recipients of the Brian Pereira Memorial Fund
  • A Mother’s Determined Advocacy Saves a Much Needed Program From Budget Cuts
  • PRISMS Releases 2024 Annual Report
  • Honoring Brian Pereira: A Champion for Families, Siblings, and the SMS Community
  • A Story of Unexpected Generosity: How One Act of Kindness Changed the Lives of 18 Families

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PRISMS, Parents and Researchers Interested In Smith-Magenis syndrome, is dedicated to providing information and support to families of persons with Smith-Magenis syndrome, sponsoring research, and fostering partnerships with professionals to increase awareness, understanding, and treatment of SMS.

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