by PRISMS | Feb 1, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Brandon Daniel, PRISMS Board President It is hard to believe it has been 30 years since the founding of PRISMS! In some ways that seems like a long time ago and in other ways it does not seem that long ago at all. When I think of PRISMS, I think about my first...
by PRISMS | Jan 29, 2023 | Awareness, Home Page, SMS Blog
Can you tell us a little bit about yourself, your family, and your SMS individual? My name is Leah Baigell and along with my husband Henry, we have two boys – Max who is 33, and Zach, our 30 year old with SMS. Max married Havens and they have our 2 amazing...
by PRISMS | Jan 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
Can you tell us a little bit about yourself, your family, and your SMS individual? My husband, Randy, and I live in Dallas, Texas, and raised our daughters here. Our younger daughter, Jenny, now lives in Denver with her husband and 4 children. Our oldest child, Laura,...
by PRISMS | Nov 23, 2022 | 30th Anniversary, Awareness, Home Page, Research, SMS Blog
By: Maggie Miller On December 1, 2020, the Food and Drug Administration (FDA) approved the use of HETLIOZ® (tasimelteon) capsule and liquid formulations for the treatment of adults and children, respectively, with nighttime sleep disturbances associated with...
by PRISMS | Oct 26, 2022 | Awareness, Home Page, SMS Blog
By: Haley Rupp My name is Haley and I am 23 years old, the youngest of three children. My oldest sister, Kristen, is 29, and right in the middle of us is Carley, who is 27 and is diagnosed with Smith-Magenis syndrome. Growing up, Carley always created exciting energy...
