Education in the Time of COVID-19

Education in the Time of COVID-19

Written by Sylvia Farber, Education Advocate and parent of Austin, 17, with SMS As we embark on a new school year in continued uncharted territory, I realize that fears are real and that uncertainty can be paralyzing. Many districts are starting virtually which will...
A Letter to Our Community

A Letter to Our Community

Written by Maggie Miller, PRISMS Vice President and Co-Founder To our PRISMS Parents, Families and Caregivers, These past few months have turned most of our lives into an upside-down spiral, with little ability to control much of anything, apart from Smith-Magenis...
Accessing Mental Health Services

Accessing Mental Health Services

Written by: Rebecca H. Foster PhD, Pediatric Psychologist, St. Louis Children’s Hospital We are all now several weeks into adjusting to life with the many ongoing implications of COVID-19. For caregivers of individuals with Smith-Magenis syndrome (SMS), this has...