by PRISMS | Jul 11, 2023 | Awareness, Home Page, SMS Blog
By: Jana Johns Kenzi and our family traveled to Houston to the Texas Children’s Hospital SMS Clinic. It was very educational and worth the 8-hour trip plus stops. It was a fairly easy process to get started. I emailed the SMS Clinic at Texas Children’s in July and...
by PRISMS | Feb 1, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Brandon Daniel, PRISMS Board President It is hard to believe it has been 30 years since the founding of PRISMS! In some ways that seems like a long time ago and in other ways it does not seem that long ago at all. When I think of PRISMS, I think about my first...
by PRISMS | Oct 26, 2022 | Awareness, Home Page, SMS Blog
By: Haley Rupp My name is Haley and I am 23 years old, the youngest of three children. My oldest sister, Kristen, is 29, and right in the middle of us is Carley, who is 27 and is diagnosed with Smith-Magenis syndrome. Growing up, Carley always created exciting energy...
by PRISMS | Nov 4, 2021 | Awareness, Home Page, SMS Blog
[vc_row][vc_column][vc_column_text] Caroline “Callie” is 15 years old freshman at Mason High School in Ohio. Her brother Will is 16 months older and has Smith-Magenis syndrome. Callie and Will are very close. Callie’s mom, Amy, refers to Will as Callie’s...
by PRISMS | Apr 2, 2018 | Awareness, SMS Blog
Amanda Downey, Mom to Finleigh (11) I am mom to 11-year-old “FinleighMaeDowney”, said very quickly in succession when meeting someone new. The new person looks up at me, and I, with a knowing smile, say “This is Finleigh.” Finleigh smiles demurely as she shyly susses...
