by PRISMS | Jul 11, 2023 | Awareness, Home Page, SMS Blog
By: Jana Johns Kenzi and our family traveled to Houston to the Texas Children’s Hospital SMS Clinic. It was very educational and worth the 8-hour trip plus stops. It was a fairly easy process to get started. I emailed the SMS Clinic at Texas Children’s in July and...
by PRISMS | Jun 20, 2023 | 30th Anniversary, From PRISMS, Home Page
The new 2022 PRISMS Annual Report has just been released. The annual report highlights all the hard work and achievements that have been accomplished in the past year. At PRISMS, we are committed to complete transparency by making our financial records and...
by PRISMS | Jun 12, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog
By Amy Pereira, PRISMS Board Member I remember vividly 13 years ago when I was first introduced to PRISMS. Joey was just 15 months when we received his diagnosis and admittedly, I was lost and frantic. As a newly diagnosed parent, my life had...
by PRISMS | Apr 11, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
By: Michelle Larscheid Kevin Sperry didn’t realize the neighbor boy from down the street, who knocked on his door over 5 years ago and asked if he could go for a walk, would become his best friend. That best friend is Coulter Daniel. Sperry said he knew Coulter...
by PRISMS | Apr 4, 2023 | Awareness, Home Page, Newly Diagnosed, SMS Blog
Caring for a child with Smith-Magenis Syndrome most likely will be the most challenging and rewarding job you will ever have. You might feel as if you are the only person who can do the job and doubt that anyone else could meet your child’s needs the way you can....