by PRISMS | Feb 24, 2022 | Awareness, Home Page, SMS Blog
By: Michelle Larscheid On Friday, February 11, Jenna Hale rushed home from school with excitement and put on a very special dress. Her mom, Charlotte Hale, fixed her hair and make-up. On the way out the door, she took photos with her dad and then they drove to the...
by PRISMS | Jan 31, 2022 | Awareness, Home Page, SMS Blog
It is estimated that 30 million people in the United States, or 1 in 10, are living with a rare medical condition. Medical professionals often do not receive training to recognize a patient with one of the nearly 8,000 identified rare diseases. When a medical...
by PRISMS | Jan 19, 2022 | Awareness, Home Page, SMS Blog
Devin Fairweather was brewing with excitement when a new coffee shop in downtown Annapolis, MD, opened. Devin applied, was interviewed and was thrilled to have been selected for her very first job at Bitty and Beaus Coffee Shop. Bitty and Beaus is an adaptive...
by PRISMS | Dec 9, 2021 | Awareness, Home Page, SMS Blog
By Michelle Larscheid, Progam Coordinator Tis’ the season for gift-giving. Are you looking for some holiday gifts ideas for your SMS child? We have gathered some ideas from our SMS community that might be helpful for you to add to your shopping list! Many...
by PRISMS | Dec 6, 2021 | From PRISMS, Home Page, Research, SMS Blog
By Michelle Larscheid, Program Coordinator PRISMS is excited to be funding Austin Burns, a 4th-year clinical psychology doctoral student at Saint Louis University, to work on developing an intervention for adolescent siblings of individuals with SMS. Dr. Rebecca...
by PRISMS | Nov 24, 2021 | Awareness, Home Page, SMS Blog
By Michelle Larscheid, Progam Coordinator This year, we pulled out all the stops to raise awareness for Smith-Magenis Syndrome for SMS Awareness Day. Here’s a glimpse at all the ways our community banded together to spread SMS awareness this November! We kicked off...
