by PRISMS | Oct 15, 2020 | From PRISMS, Research, SMS Blog
PRISMS Professional Advisory Board is comprised of some of the world’s foremost experts on Smith-Magenis Syndrome in a wide range of disciplines including speech and language, neurology, psychology, behavior, genetics and more. We are very excited to expand our...
by PRISMS | Sep 17, 2020 | Research, SMS Blog
As of September 2020 New Languages! The SMS Patient Registry is now open to participation from individuals who speak Spanish, French, Italian, and German. The research team at Baylor College of Medicine has recently completed translation of the consent and registry...
by PRISMS | Aug 14, 2020 | Education, SMS Blog
Written by Sylvia Farber, Education Advocate and parent of Austin, 17, with SMS As we embark on a new school year in continued uncharted territory, I realize that fears are real and that uncertainty can be paralyzing. Many districts are starting virtually which will...
by PRISMS | Aug 10, 2020 | Education, SMS Blog
by Barbara Haas-Givler, MEd, BCBA, and Brenda Finucane, MS, LGC Reprinted from Spectrum Journal To borrow a phrase from the Peace Corps, teaching a child with SMS can be “the toughest job you’ll ever love.” The Quest for Adult Attention...
by PRISMS | Aug 7, 2020 | Awareness, From PRISMS, SMS Blog
Smiles, laughs, wearing PRISMS gear, and eating ice cream all helped to ease the pain of missing out on our 11th Annual PRISMS International Conference which was postponed due to COVID-19. PRISMS Board and staff orchestrated a week-long virtual celebration on social...
by PRISMS | Jun 18, 2020 | From PRISMS, Research, SMS Blog
This summer, PRISMS is very excited to be funding Anusha Gandhi, an incoming medical student at Baylor College of Medicine, to work with data in the Smith-Magenis Syndrome Patient Registry. PRISMS Professional Advisory Board members Dr. Rebecca Foster and Dr. Sarah...
