A Letter to Our Community

A Letter to Our Community

Written by Maggie Miller, PRISMS Vice President and Co-Founder To our PRISMS Parents, Families and Caregivers, These past few months have turned most of our lives into an upside-down spiral, with little ability to control much of anything, apart from Smith-Magenis...

A Message from an SMS Father

Trevor Gritman, Father to Boston (8) In 2010, my wife and I had our first son. We already had an amazing three-year-old daughter and then, we were getting a boy, I was beyond excited! I immediately started thinking about the cool things I was going to teach him and...
The Importance of Understanding

The Importance of Understanding

Amanda Downey, Mom to Finleigh (11) I am mom to 11-year-old “FinleighMaeDowney”, said very quickly in succession when meeting someone new. The new person looks up at me, and I, with a knowing smile, say “This is Finleigh.” Finleigh smiles demurely as she shyly susses...
When an SMS Sibling Becomes a Guardian

When an SMS Sibling Becomes a Guardian

Stacey Collins, Sister to Craig (55) Previously published in PRISMS Spectrum Journal I always knew I would become responsible for my brother Craig’s care when our mother died, yet I still felt overwhelmed when she passed away in 2007. I had so many unasked questions,...
I am here, and I’m okay

I am here, and I’m okay

Amy Pereira, SMS mom to Joey Blogs…I read them…I find them helpful…but I’ve never attempted to write one.   I am always in awe of the writers and how honest and real they are.  I tend to find it hard to write about myself, and my son Joey specifically,...