by PRISMS | Jan 4, 2023 | 30th Anniversary, Awareness, Home Page, SMS Blog
Can you tell us a little bit about yourself, your family, and your SMS individual? My husband, Randy, and I live in Dallas, Texas, and raised our daughters here. Our younger daughter, Jenny, now lives in Denver with her husband and 4 children. Our oldest child, Laura,...
by PRISMS | Nov 23, 2022 | 30th Anniversary, Awareness, Home Page, Research, SMS Blog
By: Maggie Miller On December 1, 2020, the Food and Drug Administration (FDA) approved the use of HETLIOZ® (tasimelteon) capsule and liquid formulations for the treatment of adults and children, respectively, with nighttime sleep disturbances associated with...
by PRISMS | Oct 26, 2022 | Awareness, Home Page, SMS Blog
By: Haley Rupp My name is Haley and I am 23 years old, the youngest of three children. My oldest sister, Kristen, is 29, and right in the middle of us is Carley, who is 27 and is diagnosed with Smith-Magenis syndrome. Growing up, Carley always created exciting energy...
by PRISMS | Oct 19, 2022 | Awareness, SMS Blog, Uncategorized
By: Jean Bishop Nico, 15-year-old SMS, has always been obsessed with fire safety. He loves smoke detectors, fire alarms, fire drills, etc. He often is carrying a fire alarm or smoke detector around with him to demonstrate the alarm for one and all. Nico traveled...
by PRISMS | Sep 27, 2022 | Awareness, Education, From PRISMS, Home Page, Newly Diagnosed, SMS Blog
By: Michelle Larscheid, Program Coordinator The 11th PRISMS International Conference brought together the Smith-Magenis syndrome (SMS) community for three days of connection and education. It Is the largest conference specifically focused on SMS in the...
by PRISMS | Jun 13, 2022 | 30th Anniversary, Education, From PRISMS, Home Page, SMS Blog
By Kayla Beecher Hello! I’m Kayla Beecher, mom to Kaydence Beecher, better known as KK! We’re new to the SMS Community, but have been looking for answers for our daughter since she was about 10 months old. So, while we’ve been in the game of therapy, testing, waiting,...
